The 20 Best Rett Syndrome Doctors near New York, NY

Orrin Devinsky is a Neurologist in New York, New York. Dr. Devinsky is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Myoclonic Epilepsy, Dravet Syndrome, Seizures, Epilepsy, and Deep Brain Stimulation.

Huong Tran is a primary care provider, practicing in Family Medicine in New York, New York. Dr. Tran is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Type 2 Diabetes (T2D), and Ocular Hypertension (OHT).

Hillary Raynes is a Pediatric Neurologist in New York, New York. Dr. Raynes is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Krabbe Disease, Adrenoleukodystrophy (ALD), and Seizures.

Katherine Leaver is a Neurologist in New York, New York. Dr. Leaver is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Parkinson's Disease, Movement Disorders, Drug Induced Dyskinesia, and Focal Dystonia.

Maite Talbott is a Neurologist in New York, New York. Dr. Talbott is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Memory Loss.

Louis Dizon is a Physiatrist in New York, New York. Dr. Dizon is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Cerebral Palsy, Klippel-Feil Syndrome, Frontonasal Dysplasia Klippel Feil Syndrome, and Spastic Diplegia Infantile Type.

Mary Chu is a Neuromusculoskeletal Medicine provider in New York, New York. Dr. Chu is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, and Limb-Girdle Muscular Dystrophy.

James Brasic is a Child and Adolescent Psychiatrist in New York, New York. Dr. Brasic is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Tourette Syndrome, Movement Disorders, Fragile X Syndrome, Obsessive-Compulsive Disorder (OCD), and Thrombectomy.

Daniel Friedman is a Neurologist in New York, New York. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Epilepsy, Generalized Tonic-Clonic Seizure, Seizures, Deep Brain Stimulation, and Pacemaker Implantation.

Steven Wolf is a Pediatrics provider in New York, New York. Dr. Wolf is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Lennox-Gastaut Syndrome (LGS), Epilepsy, Seizures, Thrombectomy, and Deep Brain Stimulation.

Kristen Barbour is a Pediatric Neurologist in New York, New York. Dr. Barbour is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Epilepsy, Myoclonic Epilepsy, and Infant Epilepsy with Migrant Focal Crisis.

Aleksandra Djukic, is Associate Professor of Neurology . She completed  her neurology residency at the Albert Einstein College of Medicine. She is a diplomate of the American Board of Psychiatry and Neurology. Dr. Jacobs is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome and Down Syndrome.

Eli Rosen is a primary care provider, practicing in Family Medicine in Brooklyn, New York. Dr. Rosen is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, High Cholesterol, Cellulitis, and Cataract Removal.

"Tristan T. Sands, MD, PhD is Assistant Professor in the Columbia University Vagelos College of Physicians & Surgeons (Columbia VP&S) Departments of Neurology and Pediatrics. He is a pediatric neurologist who treats children and babies suffering from epilepsy and a physician scientist with expertise in genetic causes of epilepsy and neurodevelopmental disease. Dr. Sands completed his MD-PhD at Columbia VP&S through a Medical Scientist Training Program with thesis work in lab of Dr. Arnold Kriegstein. During child neurology residency at UCSF, Dr. Sands trained in electroclinical phenotyping of the epilepsies under Dr. M. Roberta Cilio. After finishing his clinical training at Columbia VP&S in epilepsy and clinical neurophysiology with Dr. Jim Riviello, Dr. Sands joined Columbia VP&S as faculty in 2017, first training in neurogenetics at the Institute for Genomic Medicine, and then returning to the bench to study genetic epilepsy using mouse models under the mentorship of Dr. Wayne Frankel. Dr. Sands has worked closely with families to treat hundreds of children with epilepsy. He is the author of chapters on pediatric epilepsy and genetic epilepsy in major textbooks in the field of neurology, including Merritt’s Neurology and Swaiman’s Pediatric Neurology. Dr. Sands has served as an expert on ClinGen’s epilepsy gene curation panel since 2017. In 2023, Dr. Sands was named Fellow of the American Epilepsy Society in recognition of professional accomplishment and dedication in the field of epilepsy. Dr. Sands is a 2024 Louis V. Gerstner Scholar. His research contributions include demonstration of the exquisite efficacy of carbamazepine for neonatal epilepsy caused by inherited loss-of-function variants in KCNQ2 and KCNQ3, work that led to changes to the International League against Epilepsy guidelines and recommendations on the treatment of seizures in newborn babies. Dr. Sands reported the electroclinical characterization of a new gain-of-function phenotype caused by de novo variants in KCNQ3. Dr. Sands reported variants in NBEA as a cause epilepsy and neurodevelopment, and he characterized the largest cohort of patients with epilepsy and neurodevelopmental disability caused by pathogenic variants in CSNK2B. The Sands ""END (Epilepsy & Neurodevelopmental Disease) Laboratory,"" established in 2022 in the Center for Translational Research in Neurodevelopmental Disease (CTRND), uses mouse and human cellular models to identify convergent disease mechanisms and novel therapeutic strategies for epilepsy and encephalopathy caused by rare genetic mutations. These research efforts are supported by federal grants from both NIH and private agencies.". Dr. Sands is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Epilepsy in Children, Epilepsy, Seizures, and Status Epilepticus.

Yuxi Chen is a Physiatrist in Bronx, New York. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Chiari Malformation Type 2, Cerebral Palsy, Spastic Diplegia Infantile Type, Syringomyelia, and Rhizotomy.

Solomon L. Moshé, MD, is Vice Chair of Neurology, Director of the Isabelle Rapin Child Neurology Division and Director of Clinical Neurophysiology at Montefiore. He is also the Charles Frost Chair in Neurosurgery and Neurology, Vice Chair, Saul R. Korey Department of Neurology, and Professor of Neurology, Neuroscience and Pediatrics at the Albert Einstein College of Medicine (Einstein). Dr. Moshé’s clinical focus is on epilepsy and electroencephalography with special emphasis on age-related influences on the expression, control and consequences of seizures. Dr. Moshe is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are West Syndrome, Spasmus Nutans, Post-Traumatic Epilepsy, and Epilepsy.

John M. Greally, DMed, PhD, MB, BCh, BAO, is Chief of the Division of Genomics in the Department of Genetics, Director of the Center for Epigenomics and Professor of Genetics and Pediatrics at Montefiore Einstein. Dr. Greally is a specialist in clinical genetics, with an emphasis on rare diseases and congenital conditions. He has expertise in medical genomics, the use of advanced genomic technologies to diagnose genetic conditions. Dr. Greally is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Vitamin D Deficiency, Mosaicism, Obesity in Children, and Malnutrition.

Faraj Samra is a primary care provider, practicing in Internal Medicine in Brooklyn, New York. Dr. Samra is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Cirrhosis.

Rita Marshall is a Pediatrics provider in Brooklyn, New York. Dr. Marshall is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Chromosome 13q Duplication, Epilepsy, Seizures, and Memory Loss.

Heakyung Kim is a Pediatrics provider in New York, New York. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, and Moebius Syndrome.